Welcome

Welcome to the Ledderhose disease (plantar fibroma) blog.

My name is Gary and I am the author of this blog. I am a ledderhose patient from the UK. I am an ex-scientist and hold a degree in Molecular Genetics and I try and put this experience to good use exploring this condition.

I have pages here about the treatment options, patient experiences including my own, insights from medical professionals, explanations of the science and whatever else I think may be useful for fellow patients. Through the blog I have made contacts with many patients, professionals and charities and now work as a trustee for the British Dupuytren's Society.

Hopefully you can find the pages you want using the navigation menu above or use the search box to look for specific information.

Hope you enjoy reading the blog and please contact me at ledderhosedisease@gmail.com or leave a message on here to get in touch. All information will be kept private unless you tell me otherwise.

Thank you for visiting.

Monday, 5 June 2017

Popular posts and pageviews

Was looking at a few of the stats from the blog the other day and it has now passed 350,000 page views which is pretty cool and I was interested to see where the majority of those page views have come from, in terms of which pages were getting viewed as this is a great indicator of what people are interested in. 

The most popular post by far is my original post that I have expanded over the years. It is just a share of my experience, this is why I love to add interviews when I can. This post also has a lot of interaction with over 100 comments which is great. 

Another great source of information is the doctors interview with Dr Spilken. The clinic is still running although now being run by someone her mentored. I am not sure why this interview is so popular but it is probably because there is very limited information on the net about cryotherapy / cryosurgery. Indeed it is one of the treatment options that I wish there was more information about, much like the injections that Dr Davis does, the treatment sounds great but I struggle to find significant scientific publications or patient experiences to back it up. I have had another look and put put another request for patient interviews but I am still unable to get more information out there on cryosurgery or the injections, if you have been treated by either of these or have any information then please do get in touch. 

In terms of posts on treatment options it is actually the page on orthotics that gets the most views. I don't have that much information on orthotics so I will be putting a few feelers out there to see if I can get any more information and details on how they can be of use in both relieving pain and correcting gait for Ledderhose patients. 

In completely random news we have also recently had another addition to our family which has been great fun, see below! 

Saturday, 3 June 2017

Keeping things going

Having done a few more posts recently I wanted to keep the ball rolling. With nothing particularly new to look at I will have a look back a few years and also point you to a few place. 

Firstly you follow me on twitter with @ledderhose and also on Google+ with the same account I think. There is also the facebook page mentioned on the right and then the 2 Facebook groups mentioned on that page and numerous places throughout the blog. 

Turns out this is a pretty good time to look back at what happened around this time: 

From 2013 Amelia was born post (I now have a wonderful 4 year old!!!!)

From 2012 a couple of posts around when I had radiotherapy here and here 


Hopefully something new there for those new to the blog and the condition. As always please feel free to ask questions, share experience etc.